Saturday, December 10, 2011

Cross systems collaborative care Educational disparities: As related to my personal observation and experiences.




Based on my experience as a mother with 2 sons that suffer from emotional and behavioral disorders that attend Westerville City Schools, I feel there is a great opportunity for improving educational outcomes and post school outcomes for students within the scope of Special Educational Services. The interrelated academic, behavioral, mental health and or Substance abuse problems for my children have developed and become quit sever over the last several years.  In my research and my search for behavioral and mental health services as it pertains to the academic and home/based community supports; I have found many models of promising practices that are evidence based, but not available to me in Franklin County.  Despite my efforts/petitions for early intervention, my relentless requests for access to programs designed to optimize the opportunity to intervene early and prevent continued delinquency and drug abuse, provide mental health supports, behavioral supports (intensive i.e. BIP specialist) in the academic setting have been continuously ignored or rebutted with an explanation associated with severe lack of funding, or that the types of programs, services I required do not exist


Statistically individuals with emotional and behavior disorders experience the least favorable outcomes of individuals with disabilities and the need for a School-Based.  The need for services early identification and Teaming and Wraparound in our schools are urgent. 

       Building youth competence in social skills, mental health, and general living skills (e.g., making healthy choices, organization and study skills, mentoring, securing effective therapy):  Improving and or creating programs with emphasis on Positive Behavior Plans, Mentoring, Positive youth development and youth in transition programs.
 
       Increasing family and community supports (e.g., parent guidance, homework guidance, and linking schools to community therapy and supports):  Increasing awareness and improving the cross systems of care network for effective collaboration between families, schools and the community based supports and programs.


       Identifying students with exceptional needs and implementing appropriate accommodations and supports. Improving  and eliminating barriers in the Childfind programs

       Building youth competence in social skills, mental health, and general living skills (e.g., making healthy choices, organization and study skills, mentoring, securing effective therapy):  Improving and or creating programs with emphasis on Positive Behavior Plans, Mentoring, Positive youth development and youth in transition programs.
 
       Increasing family and community supports (e.g., parent guidance, homework guidance, and linking schools to community therapy and supports):  Increasing awareness and improving the cross systems of care network for effective collaboration between families, schools and the community based supports and programs.

       Enhancing school and teacher capacity to address multiple components in academics and behavior (e.g., classroom structure, teacher-student interactions and evidence-based academic instruction) Implementing effective behavior intervention plans and supports  with observable, objective and measurable goals; that involve positive behavior plans that provide practices /supports and tools for  to improve academic and behavioral academic and behavior outcomes for all students.






Contributing factors

       Failure to provide early intervention, prevention, assessments/diagnoses, available treatment and support versus the function and functional needs of child/youth along with diagnosis through the school system and juvenile justice system.  In 2002 I feel it would have been practical to evaluate my boys at the behest of their teachers.  

       Lack of framework and services that facilitate evidence based support and services for k-12.  The need to include behavior modification in the IEP for the school setting is imperative.  The academic component of the IEP should not be the main focus of the as much as strengthening the underlying cognitive disruptions. Emotional/Socially delayed students need to be taught how to strengthen their learning and develop compensatory strategies for modifying maladaptive behaviors.  In educational terms, cognition, psychosocial/behavioral, sensory-motor/physical; three major areas that can impact learning. The Missing element to date from the IEP’s of both my boys are "tools" to help them learn and generalize new behaviors,  use academic materials and coaching as  the "vehicles" to reach the objectives.  


       A need for better cross systems collaborative care in early intervention:  For example, Emotional and behavioral disturbance currently in Ohio is classified as mental health thus not covered under DODD/MRDD rules The Idea has specific language and rules that a child meeting certain criteria’s under Emotional and behavioral disturbance may be found as having emotional / social developmental delay based on certain circumstances pertaining to the developmental milestones, environment and other risk factors. State specific Idea and DD eligibility requirements have created egregious problematic barriers where both my boys meet eligibility for developmental delayed but have continuously been denied services.

       Lack of treatment options i.e. dual focus, age restrictions and limitations for accessing services: Adolescent Mental Health, Hospitals, behavior supports/coaching, Day Treatment Programs, etc...These restrictions are due to allocation of grants, lack of funding and lack of coverage from private, public funded health insurance and no coverage under the Mental Health Parity Law.

Students with Emotional/Social  and behavioral disabilities are usually identified later than those with other disabilities, despite the availability of valid and reliable screening tools. Research suggests that behavioral and emotional problems identified during adolescence can often be linked to early childhood behavioral patterns (Hinshaw et al., 1993; Walker, Colvin, & Ramsey, 1995; Walker, Shinn, O’Neil, & Ramsey, 1987; Walker et al., 1990). Early intervention appears to be both possible and cost effective (Forness et al., 1996; Hinshaw, Han, Erhardt, & Huber, 1992; Knitzer, 1996; Walker, 1995; Zigler, Taussig, & Black 1992).

Tuesday, October 11, 2011

Barriers caused by educational and mental health policy oversight, prevent timely access to care

There is no doubt in my mind,  that the public mental health and education systems are underfunded and crisis-driven, rather than prevention-driven. Consequently, our children and youth are falling through the cracks, as they and their caregivers are left navigating through a path filled with darkness, from the pain of being failed by a system that is supposed to be supportive.  However, it feels logical to me that to implement an early intervention and prevention policy, in the long run will cost less money, reducing the unnecessary costs to the other systems of care for youth. 


Many kids today, face interrelated academic, behavioral, mental health and or substance abuse problems; that with out the appropriate supports,  become quit severe impairing quality of life and potentially last a life time. It is clear to me, that mental health wellness for children and youth, is not a public health priority, in that more often than not, one finds that they have to fight to get the most basic services for their children. 


It is my hope that with my Testimony, I will appeal to your compassion and ignite an awareness that our current policies are not practical. As I describe how barriers caused by educational and mental health policy oversight, has prevented timely accesses to care,  failure to identify both of my children under the Individuals with Disabilities Education Act (IDEA) and Child Find program;  failure to meet the needs my children, who have emotional and behavioral disorders—  that you will hear my call  for the need to stand up and speak out and fight for change.


On September 21, 2011 I was faced with the heart aching decision to relinquish custody of my 17 year old son with a singular and primary goal of getting access to treatment for his mental health care needs. The failure of addressing my children’s needs by all child serving agencies, but more specifically failure in addressing these need by the mental health and education agencies in my county, is irreprehensible. These agencies all share the primary responsibility in addressing ALL children's needs before they reach a crisis. This failure to provide these services in a timely manner is the most pertinent obstacle that has pushed me into giving up custody of my son.

The two core factors for relinquishing custody are: the lack of access to appropriate and timely mental health services/supports in both the public and private sectors and a lack of oversight for existing programs that should be providing these services and supports.

Despite my early requests for intervention, for access to programs designed to optimize the opportunity to intervene early and prevent continued delinquency and drug abuse, provide mental health supports, behavioral supports (intensive i.e BIP specialist) in the academic setting, the needs of my children have been continuously ignored or rebutted with an explanation associated with severe lack of funding, or that the types of programs, services I required do not exist. 

Based on my experience as a mother raising 2 sons that suffer from emotional and behavioral disorders, I feel there is a great opportunity for improving educational outcomes and post school outcomes and recovery outcomes for students within the scope of Special Educational Services and mental health services.  It has taken a VERY long time to get the services I need for my boys and a lot of pain and heartache for my entire family.